Life consistently intervenes

These last two days have been exciting. I’ve applied for an extension to my Big Project (actually for funding to finish it) and a friend has installed air conditioning for me, which means I’ll be able to work even on hot days. Like today. All this took time and it’s not quite finished. I’ve got through it by eating cherries, mainly. Also, while my friends were doing the installation, gradually tidying my place for Chanukah. This saves me a lot of work today, tomorrow and Thursday but it left me in pain and… I had to sleep until the pain wore off. Juggling installation and Chanukah and chronic illness can be fun. I woke up just in time for lunch and then realised I’d missed my whole Tuesday morning. But my basic housework is done a day early and Chanukah is on its way and I’m so close to ready. I have to run messages tomorrow, that’s all.

The time is the tricky bit. I caught up with all the things I had meant to finish by late yesterday and then looked at the clock and it told me I’m several hours late in writing this. I have the best reasons, however, and the airconditioning is bring the temperature down to one that doesn’t cause more pain and so I will be able to work into the evening.

I was going to talk about meaningful things today. I had them all planned. Instead, I need more rest. My body has announced this to me, using strong language. I shall watch science fiction television for a bit. It’s work, but not hard work. It will have consequences next year, but doesn’t solve any issues today.

And then I will go through all kinds of odd scraps of paper to find out what 9 am in my diary for tomorrow means. I have no idea…

May your life be more under control than mine this week, and may you be neither too cold nor too warm.

Relationships and Values

The Washington Post editorial board published a ridiculous editorial last week on the fate of marriage given that young women are much more liberal than young men, some of whom are distressingly right wing. The article implied that women should compromise their political beliefs to get married.

My initial reaction to this silly article is best summed up in a saying from second-wave feminism:

A woman needs a man like a fish needs a bicycle.

According to Wikipedia, Australian filmmaker, politician, and activist Irina Dunn said that.

My second reaction is to ask why are we still getting articles like this in 2023. This one’s not quite as bad as the one Newsweek did in the 1990s about women over 40 being more likely to be killed by terrorists than get married — which wasn’t remotely true as well as being stupid — but it’s pretty bad.

I mean, why all this emphasis on getting married?

The Post seems to think married people are happier, but their source for that data is from a right wing organization. There is some data that married men are happier, but ….

Based on my in-no-way-scientific observation of people, single women are as happy as anybody else, and the women I’ve known who were the unhappiest tended to be married women in complicated marriages.

I’ve been in a committed relationship for the past ten years (we’ve lived together for nine). Before that I was single for many years. I’ve never been married and never had a long ongoing relationship before this one. I was happy being single and I’m happy being in this particular relationship.

The things that make me unhappy have nothing to do with my relationships.

It should go without saying that my partner and I share similar political views. There is absolutely no way I could be seriously involved with a partner who didn’t share my politics. In fact, one of the reasons this relationship is successful is that we share deep values.

There’s an implication in this discussion that political views don’t matter, even though The Post also constantly writes about polarization. It’s as if politics is like rooting for a baseball team.

But politics, especially in these times, is a window into values. If my values incorporate feminism, antiracism, addressing climate change, doing something about wealth inequality, and related issues, how can I possibly get involved with someone who embraces authoritarianism and white supremacy? Continue reading “Relationships and Values”

A Nothing-Day

I lost a chunk of today because of stormy weather. That means this post is late. Very late.

Storms affect some folks more than others, and I am one of their number. I rested for ten minutes when everything hurt too much and I woke up two hours alter. This means the storms are long and enthusiastic. When they’re sharp and socking, I get migraines. It’s all a bit too exciting, to be honest.

It took me a long time to discover that I (and a group of friends, likewise affected by storms) all have difficulties with inflammation. I’ll know this lot of storms has passed when I suddenly lose over two kilograms of weight. That’s about four and a half pounds for those who distrust metric measures. When there’s weather like this I make jokes about rolling down hills rather than walking because the weight change is mostly around my legs and my middle.

I’ve also been known to tease people who think I need to lose weight. I’ve not encountered anyone today to whom I could say, with a high pretence of seriousness, that if they think I need to lost a lot of eight in a hurry, then they should drop in tomorrow. Today wouldn’t’ve been a good day for this joke anyhow, as tomorrow looks as if it will be just as rotund and just as inflamed and just as stormy. On Thursday, however, I shall probably lose 3 ½ kilograms. My body is telling me this.

It’s hard to settle down to work when I’m round like a balloon, but I can’t just leave things. What I do is make a list of the minimum I need to get done. Today my list contains this blogpost, a supermarket delivery, several hours of research, many emails sorted, and 2 applications finished. I’m a bit under a third of the way through, and it’s almost 4 pm. Hopefully the storm will ease off for a few hours and will allow me to furiously catch up. We’ll see.

While we all sit back and watch the weather to find out what the rest of the day will bring, I might make a giant cup of tea. Then another. And, while I’m drinking that tea, finish with some emails and one of the applications.

I don’t want to. My body is telling me to sleep off the inflammation. What I’m hoping is that you all had a wonderful Thanksgiving and slept everything off on my behalf. Australia is not a Thanksgiving country, so really, I have no excuse to go back to bed. I rely on you…

Some Thanksgiving Thoughts

In the United States, we all grow up with the story of the First Thanksgiving between the Pilgrims who came from England and settled at Plymouth Rock and the Wampanoag, the people who were already there. There was probably some kind of feast celebrating survival and harvest and the Wampanoag did join in.

But while there were various proclamations holding thanksgiving celebrations throughout the colonial years and in the first years of the United States itself, the root of the holiday we celebrate today comes from the Civil War and is a celebration of the victory over the enslavers’ rebellion. Since I grew up in Texas, which was part of the rebellion, I don’t know if this was ever mentioned in schools in other parts of the country, but it certainly wasn’t in mine.

As we reckon with our true history, it seems more appropriate to me today to focus on the celebration of defeating those who set out to undermine our democracy rather than myths from early colonizers that try to sanitize their relationships with the people whose land they were on. This is particularly true today when we are struggling with efforts to destroy all that’s good about our country from people who share the views of the enslavers who rebelled in 1861.

Heather Cox Richardson has an excellent essay on this. Go and read and ponder how we should protect our democracy today.

And give thanks for democracy while you’re at it.

Remembering Michael Bishop

photo of Michael Bishop

One of the things I always liked best about Michael Bishop is that he came across as so supremely ordinary. A slender guy with glasses, short-haired, wearing button-down shirts, who ate tuna-fish sandwiches for lunch and was politely friendly to strangers.

Looking at him, you might not guess that he had an outrageous imagination or the gift of writing effectively about the darker sides of human life. And you definitely wouldn’t know of his wicked gift for satire, one that came through in most of his books.

You might not also guess just how much courage he had, but that was something else he displayed in the same quiet way he did most things.

Most of the remembrances I’ve seen of Michael, who died November 13, mention what a good human being he was, and that was very true. But if you’ve read his fiction, you are aware that there was nothing naive about his goodness. He knew the darkness of the world and was good anyway.

He was our first teacher at Clarion West in 1997, an excellent choice to ease us into that intense experience. That’s where I first saw his courage, because he not only challenged us all to write a flash fiction that week, he wrote one himself and let all of us read and comment on it.

That seems a small example compared to the way he spoke out against gun violence after his son Jamie was murdered in the mass shooting at Virginia Tech. He spoke to people who had the nerve to say to his face that his son would still be alive if he’d been armed.

I am not surprised that some people think that way, but I am still appalled that anyone would say something like that to a human being grieving such a loss. That Michael persevered in the face of such evil — and I have no other word for it — is yet another testimony to his courage.

He was, of course, a brilliant writer. I think Brittle Innings is my favorite of his books. That book combines his love of baseball — and he did love baseball — with his deep understanding of U.S. culture and, of course, with Mary Shelley.

There are very few people who could combine all those things, I think. I once wrote a flash fiction in which he was hired as the general manager of a flailing Atlanta baseball team, one that referenced the book. I think he appreciated it.

To me, he was a teacher, mentor, colleague, friend. He blurbed my first novel and later on asked me to blurb one of his books — a greater compliment.

He leaves behind a legacy of written words and an example of a life well-lived.

But he also leaves a hole in the lives of many of us. This is not new to me, now. One of the realities of getting older yourself is that you lose people and the number of losses gets larger every year.

This isn’t going to change.

All we can do is appreciate people and be supremely grateful for all the things they’ve given us.

Michael Bishop gave us a lot. We’ve all got a lot of work to do to live up to his example.

Identifying bigotry, bias, and poor judgement

Today’s post was going to be short and simple because today I feel very short and rather simple. Except it’s my least favourite topic and it’s the topic that governs so much of our everyday. So it’s long and complicated.

Because I often encounter prejudice, I have ways of measuring how far it extends so that I can avoid problems and problem people when there are no solutions. I don’t walk away from anything lightly, but I need ways to assess if an event of group has become unsafe for me or if I’ve become so much a second-class citizen that I cannot be certain my voice will be heard when a problem arises. I have walked away from something just this week, which is why this post is so very personal.

These are some of the things I use to look for incoming problems and for current problems. Every one of them relates to experiences from the last month or ongoing issues. They don’t work for extreme prejudice ie I had no way of predicting the Molotov cocktails that were thrown at a building I was in or hate mail I received. I cannot gently walk away before bad things happen. It’s not a complete list in any way. In fact, it’s simply the tools I’ve had to use this last week.

1. Red flags.

Indications that someone doesn’t see things the way I do, and (the ‘and’ is important) may act on their viewpoint in a way that’s, at best, uncomfortable, or at worse, dangerous. I avoid someone who lives locally to me, for instance, because they always want to talk about Israel or money: I’m Jewish, so I must always want to talk about Israel or about money – those are two red flags. There are other red flags for other aspects of my life. Some of them relate to being safe as a woman, some being safe as a person with chronic illness and disabilities. This last week I’ve encountered ten red flags from three people. Red flags often feel creepy to people in the same group. They’re indications of where a path can lead. When I mentioned one of them (the gender-related series) their response was “That’s so creepy.” While they’re not themselves dangerous, they can lead to bad places. One red flag won’t make me walk away from a person. We all make mistakes and we can all be stupid, after all. A consistent display of red flag behaviour, however, is a safety issue.

I first try to address the behaviour, because some of it is copying others. If telling a person “This hurts me” or “This makes me uncomfortable because…” doesn’t change anything, I have to get out.

2. Equality of access

One of the easiest-to-spot evidence of othering is when two people have equal background and put equal work in and one is rewarded while the other has to move on. This has applied to me more in Cnaberra than elsewhere in Australia. I can teach a subject for years and have amazing student ratings and full courses every time and then be dumped from the institution without notice (ask me about why I’m not at the ANU one day) or be told that, while other people are remembered by the organisation, I have to apply as if I’m a new person. I ask about my records with them and they say, “We’re not looking at history.” Except they do… with non-minority writers. Because of my disabilities, I have limited energy and not a lot of income, so it’s very easy to make something impossible for me by making it a two day job to apply for something that will give two hours income. If I weren’t in such a small community and if I didn’t hear that others are not made to jump through the same number of hoops and that their experience is counted and that most of the jobs I have to apply for as if I’ve never been seen locally are given to people whose names have come up in discussions… I’d assume it was a level playing field. There are, in other words, organisational ways of othering and of keeping undesirables out.

It took me a long time to realise this was happening. My moment of illumination came when someone carelessly said “We can’t consider you because you’re not experienced enough. The others have more qualifications, too.” This sounds innocuous. Except… I have two PhDs, a teaching qualification, 30 years teaching experience, ten novels, thirty years organising experience, non-fiction published on the subject. even the occasional award. What did my replacements have? About 1/10 of these things. What works in my favour outside a bigoted community is an actual impediment within one.

3. Fairness of treatment

This is so complicated in real life, but it comes down to “If you have two incidents at an event, are they being treated using the same set of values and the same approach/process and are all people involved in them being treated with equal fairness.” This includes communication about the incident. It’s so very personal at the moment that I’m not going to give an example, because it’s a bit triggery. Triggers are things to be avoided.

4. Being included

Who is at a social event and why? How are they treated? There are some once-close-friends who I will not dine with any longer because they only include me when they want to prove they’re not bigots and when I am at the same table as them they talk down at me. I’m only allowed to speak when spoken to. I have to respect the social order.

Or, from the other direction, is there someone who is continually left out even though they technically belong in a particular group? Are there events that don’t include this one person time after time? And, if asked, do the orgnaisers simply assume someone has asked them? Additionally, if the person is disabled, does anyone even both to ask “What do you need us to do so that we can include you?” or is the assumption made early on that it’s easier to invite everyone and expect that they won’t be able to come.

This kind of thing is very badly recognised and handled in Australia because we don’t like to admit we do it.

5. When specific racist/problematic things occur, how those in charge react?

When there is hate mail or stones or Molotov cocktails or something else, how do the people in charge handle it? For years I was the go-to person for advice on these things. Now I’m told socially, “Look, antisemitic event in Canberra. You should know.” It’s done with apparent sympathy, but no support, and no sense of how I may feel to be told of a Hitler salute and that it was handled with less effort than the amount taken to deal with issues where I was seen as the guilty party. And that’s the caring people. It’s a red flag that the allies only see themselves as allies. This relates to people from majority background, or some other minorities. It also includes people who come from minority backgrounds but do not have the life experience to handle problems for others from that background, but who think that they do – this is a very sticky and thorny area. All of these people can unintentionally compound a problem. It’s also a red flag that the wider community accepts something.

There is one very difficult area here. I said that it was a very sticky and thorny area in the previous paragraph. What is this sticky and thorny area? Passing: ie it includes people from the same minority background who can ‘pass.’ Some of us have knowledge about handling difficult issues, and some do not. Just because someone from a minority passes, doesn’t mean they have the knowledge to make wise decisions… and it doesn’t mean they don’t have this knowledge. It depends so much on the individual.

If I weren’t public, for example, about being Jewish, I could publicly skip all the cultural and religious aspects of Judaism and pass as white in Australia. It wouldn’t negate my knowledge, and I was brought up traditionally and so have a fair amount of that knowledge, and my historical knowledge is mostly relating to Europe, which deepens my understanding. I know stuff, in other words, and can give good advice if asked. (The red flag for me is who rushes into things without asking, but that is an offshoot of 2 – experts who are not seen as experts because they are being othered so their expertise is not acknowledged.)

A very well-known group that has ‘passed’ is those Sephardi and Mizrachi Jews who went into hiding for their own safety. Many Sephardi Jews were killed after Inquisitional interrogation brought out that they ate Jewish-style eggs, or salad on Saturday afternoon ie that they hadn’t relinquished all Jewish culture. Some remained Jewish in secret and a few of them are emerging into the Jewish world now. Most converted to Christianity or Islam and remained safe but lost hundreds of years of heritage.

For anyone who can pass, it can be simply not telling people about your private life and that can save you from so many mean places. I choose not to hide, and these last two years I’ve questioned my own wisdom in making that choice. Anyone who cannot hide, of course, has to deal with a lot more garbage than those of us who can and those of us who do. How those in charge of a place or an event react to problems hurts those who cannot and those who will not hide their minority identity consistently and often.

This is not even close to a complete analysis. It’s based on my experiences, mostly over the past year. There are bigger and much better analyses. The first place I send people who want to get a handle on this is https://nyupress.org/9781479840236/white-christian-privilege/ While Joshi’s book is about the US, the first three chapters in particular apply to Australia. Why is this so important? Many of the people who cause such problems have good intent and are otherwise nice people. They don’t, however, have a solid way of measuring their world view, understanding how it affects their thoughts and actions, and using understanding to handle bigotry. The work is often given to those who are bigoted against, which means that the experts are also the ones who need support. It means, also that those who have to deal with all these things in their everyday have to be willing to take on, as voluntary work, helping privileged people. Step one is understanding, and Joshi’s work is the first step in the path to that. Just the first step. Right now, I really wish more people in my home town would take that first step.

Ironically, I sued to teach these subjects to public servants. I was thrown out of that job without notice and without even a letter saying “Sorry we’re losing you after 20 years.” I found out I’d lost the job because of a notice saying “Your email account is being cancelled.” Manifestations of prejudice are varied and some can only be handled by walking away.

Talks and ducks and coots and swans

I writing several talks this week. I didn’t used to write talks: I used to simply deliver them. Because of the health issues I have, though, I can’t guarantee that, on the day I give a talk or when the talk is recorded for later delivery (this latter is what happens this evening) I will be able to think effectively and to speak cogently. Most of the time, now, then, I write things down. So many people want to read it as a written word, too, that I often have a small audience (this month through Patreon) that wants to see what I say.

I have two pieces for finish today. One is an academic paper. My academic self is quite different to my fictional self when it comes to talks. The academic self is more intense and only sometimes includes bad jokes. The paper is about where the history comes from in Naomi Novik’s Spinning Silver and is for a conference in Melbourne on Monday. I need to complete the overheads today and to do that, I need to know what I’m going to say, so it’s wise to finish the whole paper.

I have written almost all of the paper (and it’s already in the hands of someone who won’t be at the conference on Monday, but who needs to see it). All I need to do today with it is finicky finishing and the Powerpoint presentation. Academic work always contains much finicky finishing.

To do these last bits, I read the written word aloud, over and over. Each time I read a sentence, I listen to discover it makes sense in its place and whether words need switching or the sentence needs moving or if the whole thing has to be crossed out and replaced with something more sensible.

This is why most of my academic papers relate closely to my current research. I used to deliver more entertaining papers, but then I realised that the closeness of the editing for a good paper advances my thought on the research. Often it’s subtle advancement, but it’s always useful. My papers are less fun, but way more useful.

After the conference, I’ll take the paper and compare it to the chapter it relates to and the chapter will suddenly make a lot more sense. Editing today, then, means editing next week and the week after. This is a good thing.

What about the talk? The talk is for Octocon, which is in Ireland over the weekend. On my Monday morning I will technically be in Ireland having delivered the talk and in Melbourne, delivering the paper, mere hours apart. This is why my talk is being pre-recorded. I will have pictures for the Octocon talk, and these I still have to find and put in order. Mostly, though, with the talk, I need to make it make sense for people who have not read the books I’m talking about (by Tolkien, by Australian writer Leife Shallcross, by Irish writer Peadar Ó Guilín, and by Naomi Novik), who haven’t studied the subject I’m talking about and who want a bit of lyricism or humour to entice them to keep listening. The subject is how space and boundaries are important to fantasy fiction. Right now there’s too much lyricism. It’s easy to wax lyrical about forests and rivers and borderlands. However, I don’t want the words to ripple and flow and to create an abstract design: I need them to make sense. I have 800 words to add, then the rest of this talk lies in the edits. More reading aloud. More making things make sense to people who don’t live in my brain.

At 10 pm tonight, I have a long meeting with someone in Montreal. She will walk me through the tech side of Octocon, sort out all the tech issues related to the talk, record the talk and… my day will finish early tomorrow. Tomorrow I have 2 meetings (one for work, one for fun) and need to finish the first draft of another talk. I have five conventions/conferences this month, only one face to face. I’m short on time because all this is as well as my research. It’s work I love, but it’s not paid, also, so other things have to happen to keep me in food and electricity. This fortnight those other things are my research (for which I have funding) and Patreon.

Also, if anyone thinks that chronic illness and disability disappear in weeks like this… they do not. This week is a very exciting juggling act. Furthermore, most of this work is not paid. It’s just part of the life of a writer. Each of us have different things we do. Because I’m partly an academic (mostly unemployed, but not entirely) and partly a writer, much of my life is spent explaining awesomely interesting subjects, but without the support of an academic salary. It’s not always terribly easy.

Welcome to the life of many writers. Some of us are ducks, some of us are coots, some of us are swans, but we all paddle madly just out of sight in order to stay afloat. Many of us (me, for example) battle significant everyday issues as well. Every book of ours you buy, every Patreon you support or Ko.Fi you buy, makes the paddling a little less frantic.

Fairies and Sarcasm

I misheard someone talking about the fairies in their garden as “I’ve got theories at the bottom of my garden.” And I do. So many of them. There are people who cannot deal with me for more than ten minutes at a time because that’s the limit they have for the way my brain works. I also have friends who love to talk with me for hours because I apparently say interesting things.

I’m not going to do that today. Not so much theory. Just a smattering of reaction that may one day become theory.

Yom Kippur is over and my life is the better for it, but I’m wrapped into how Australian Jews are represented on the public broadcaster responsible for multicultural services in Australia. My latest email from them told me (on Yom Kippur, though obviously I didn’t read it until afterwards) which shows are being moved from their streaming service. One of the two lead shows that is being taken down, as announced on the Jewish Day of Atonement, is David Baddiel’s “Jews Don’t Count.”

This is the same broadcaster that, when I asked what TV programming they had for the High Holy Days last year, sent me to a Hebrew radio show (hint: Hebrew is not the standard language of Australian Jews, English is).

This year, the special show they had just before our New Year was set at (in their regular email about programming), they explained, a Jewish funeral. It may have been a comedy set at a funeral, though the detailed description sounds as if it was set in the mourning period immediately after a funeral. I don’t know for sure because it was, honestly, not something I wanted to start my new year with. I’m assured by a non-Jewish friend that it’s a good show. If they put it on again, I’ll watch it and find out. I’ll watch the Baddiel tomorrow, though, because these programming decisions make me feel very much as if there are fairies at the bottom of the broadcaster’s garden, that Baddiel’s title sums up what needs to be said about it, and that I’m far safer with my theories than watching public television right now.

The good news is that some of my thoughts will be words at a bunch of places in October: at the Irish National Convention (I’ll be presenting online), at a Melbourne academic conference, quite possibly at the World Science Fiction Convention (again online), and elsewhere. I won’t be bored. (And if you want details of where I’ll be, let me know and I’ll post them as they are finalised.) I also won’t be able to see if SBS finally sort out why I wax sarcastic about them. They stopped replying to my emails when I pointed out that sending me to Hebrew radio was about the same as sending Australian Catholics to Latin radio.

I may be full of ideas these days, but I used to be such a nice person. I suspect sarcasm comes with menopause. Just suspect, mind. I now want to read a proper and carefully researched scientific study of the relationship of sarcasm to menopause. I shall go to bed and dream of such a study…

Flowers and garbage and invisible illness

Very few people wonder how those of us whose bodies are less capable of doing this or that get anything done. I am a very good illustration. I had glandular fever (mononucleosis to my US friends, I believe) in my mid-twenties and developed many of the vile long-term symptoms that people currently associate with Long COVID. In other words, I’ve had similar symptoms to Long COVID for nearly 40 years. This is not the only problem I’ve faced in my life, nor, indeed is it the biggest. It’s certainly the one that has invited the least inquiry. And the least understanding. Today I want to talk about how I’ve achieved anything at all in a life where I cannot guarantee even an hour without fatigue and pain. The physical side of it is one story and I don’t want to talk about that today. Today is, you see, an exhausted day, when I should be in bed wondering when I will improve a bit. It’s not a day I have to be in bed, however – those days when any exertion at all just makes things worse have become rarer as time passes.

I lost my time sense last night. That is, to me, a signal I need to live my alternate life. This post is brought to you from this alternate life. It’s a half day later than usual because I had to wait until I was able to do it.

This is how I handle days like this. If others have needs I fit in with them, but the next day is worse if I fit in. I suspect Friday will be a bed day because Monday night and Tuesday nights are brain fog days (with occasional windows of opportunity, one of which is right now), Wednesday is full of meetings and Thursday is full of unexpected medical stuff. I didn’t expect Wednesday and Thursday to be the way they are, which is how I can predict Friday. One thing I’m doing to prepare is (with the help of a friend) a big shop. One of the things I will be getting is reheatable food for Thursday to Monday. On Saturday I knew that yesterday and today would be a bit of a struggle, so on Sunday I prepared food for both days. This planning is constant. And I don’t always have the energy to do it.

There’s a lot of body-awareness and a lot of planning to get through the everyday and when one of these fall through things are like a deck of cards and I have to stop and start all over again. Currently I have enough income so that if the cards all fall down, all I need to do is drag myself to the computer and order enough home delivered food to get me through. Or open a tin from my cupboard. I lived on dolmades for 3 days recently, then I advanced to chicken and chips, because that was the easiest option and I wasn’t up to more. Then I was through that phase and was able to cook again.

Knowing I’m exceptionally busy on other peoples’ schedules this week means I can plan in advance. When anyone tries to spring something on me, they can set me up for a whole week of not being able to deal and I will hide it, generally, but there are people I really do not like because they never check if I’m able before springing things on me. If I had energy on the worst days, I could explain to someone who says “I have to see you” that it has to wait because I’m unwell. In fact, I do explain “I can’t do it now because…” but I can’t get into detailed explanations. Exertion can hurt and sometimes the little things like explaining (especially if there’s emotion attached) can hurt more than the large. This is why, oddly, the chronic fatigue is more of a problem in my life than more serious problems are.

The other thing that happens when my time sense gets derailed is that I drift off into byways. The path this post has taken is one of these byways. I meant to launch straight into “This is how I get novels and non-fiction written and research done and achieve as much as some people who have never had any sort of debilitating illness.” I think the tide of emotion carries my life forward at these moments. This post is an excellent example, in fact, of how this happens.

I use emotion to get work done at times like this. I sat down at my computer to write this post, having no idea what I’d write about at that point. I saw my research document open on the desk and just took a look before opening a new file. I edited three paragraphs. It wasn’t a lot, but over a week (even a really bad week) this adds up. Then I stopped and thought, “Why did I do this? Why didn’t I go straight to the blogpost?” My answer was, “It’s one of those weeks” and then “But I should tell people”. Because the sense that something is important gives me enough fuel to write. I will sit down quietly for a half hour as soon as this is posted, and then I’ll go shopping with a friend and make sure I have food for the coming life-sapped time.

I’m the sort of person who would rather work methodically, so when I’m less beleaguered, all my work is done entirely sensibly. On days like today, I allow the wind to carry me along, and take advantage of the moments I have. Little things, done when I can. That’s how I deal with the fatigue and the near-constant pain. I factor in the physical work I need to do to keep going and, month by month, I deal. I write whole novels this way, and do my research and when I can’t do anything except sit or lie down, I think things through. Slowly. My brain stutters at times like this. It’s bad for quick thoughts and insights – it’s wonderful for deep and slow unpinning of complex problems.

A few years ago, when I realised my strange lifestyle, I found a way of describing it. That description was more useful to friends who asked “Are you OK?” than to people like the one who emailed me a the start of Yom Kippur last year, and who wanted to meet urgently. It was a week far worse than this and I wouldn’t be up to a face to face meeting for weeks. I lost my Yom Kippur over that email and lost some days after it. The person who emailed would not have understood this from my metaphor. I needed more capacity to explain than I had… some situations are simply impossible, still.

My metaphor is not a new one. I say that life throws me garbage and, bit by bit, without pushing myself into more illness, I turn that garbage into fertiliser and it grows me the nicest garden. All my published novels are flowers, and Story Matrices, the book that has just been short-listed for the William Atheling Jr Award, is a rather nice rosebush. That book was written in a shockingly bad year, but the editor, Francesca Barbini, knew this and worked with me according to my actual capacity. She didn’t try to make me into something I’m not. She helped me create the best thing I was able to create in a year from hell.

Every paragraph I edit and every thought I have transforms this strange life into a strangely interesting life. Chronic illness isn’t the end of things… it does however, change things. And most people won’t ask or won’t know or won’t care. That’s part of the garbage being thrown. That garbage can be isolating and it can be depressing, but it’s excellent fertiliser.

Now all I need to do is find a publisher for the novel I wrote when I wrote Story Matrices. It’s the fictional approach to this isolation and strangeness and is a very different COVID lockdown novel to most. My way of dealing with the difficult is rather like a portal fantasy, you see, where you open doors briefly and visit worlds you can’t remain in because remaining is dangerous. My COVID novel is a quietly adventurous version of the portal novel that is my life. Glenda Larke (a friend with a marvellous new novel) was my beta reader and she told me that it was the best love story that she’d ever read. It needs a home, but writing it was the accomplishment. Just as the publication of Story Matrices was an accomplishment. Just as editing three paragraphs of my research and writing this blog post are accomplishments.

Chronic ill health isn’t the end of things. It does, however, require a series of reinventions of self, and the ability to say “If this is all I can do today then that’s fine.”

Why am I telling you all this? Because Long COVID is not going to go away. Some people will recover and some won’t. It’s quite likely you know someone who needs to know that this kind of chronic illness is not that end of world and that, over time, some extraordinary things are possible. They probably also need to know that the vast majority of folks around them will not see or even want to see what the new life entails.

Adjusting never stops. Seeing your own needs is essential. And once you know what your signals are (in my case, that loss of time and that drifting brain and the need to dump my once-wondrous rationality) and how to handle them (when to push, when to let things slide, how not to live on chips) life can become a lot better. Your garden will be all the better for the fertiliser. It won’t feel that way, however, because no matter what you do with the garbage being thrown at you, it’s still garbage. I’m still learning to celebrate the flowers and not be personally affronted at the garbage that is thrown in my direction.

Old hobbies, new joys

I have a new essential oil.

I used to make perfumes as a hobby and every now and again I save up a bit of money and get new fragrances for my bath. No-one around me asks about my perfumes and I think everyone’s forgotten them. I don’t know if this is good or bad, but I still love creating fragrances just for me. Not perfumes any more. Scents for my home.

As I change with time, the scents I like change, too. I used to love the sophisticated and the swanky, but now I love to be reminded of the bushwalking I also used to do or for my body to be reminded that it’s fine to put tension and pain aside. It’s hard to bushwalk when walking to the shops is beyond me on most days, but it’s easy to lie back in a hot bath and smell tea tree and lemon myrtle and kunzea. It’s also very good for arthritis, when combined with magnesium salts.

The new essential oil is may chang (litsea cubeb). I mistook it for cubebs when I saw it in the catalogue, but the moment I smelled it, I knew it was perfect for me. Cubebs are one of my favourite peppers for cooking, which is why I bought something I wasn’t sure about. Cubebs is still one of the best peppers for cooking. It is properly peppery and has a delightfully fresh aftertaste. And may chang is perfect with lavender and just a drop of diluted Bulgarian rose for an hour away from the world.

Now I have a favourite cubeb for a scented bath and one for cooking and they’re not related at all. The same applies to mint. My favourite mint for cooking is… most mints. My favourite mint for the bath isn’t a mint at all, it’s a prostanthera, a native Australian plant that smells of mint and just a touch of eucalyptus. When I was a child I had a favourite native mint bush which I always used when I needed mint tea. On the essential oil bottle it says “Bush balm mint” but it is still the perfect mint tea bush from my childhood.

Some of my oils help this illness or that (especially the muscle aches and joint aches that are my everyday), but mostly I like to feel as if I’m in an English country garden, or in the local bush or, in this case, I don’t know where, but the new scent is the best ever.

I also use the oils in teaching writers how to built sensory worlds for their fiction. Or I used to. I developed my scent teaching from my hobby of perfumerie, and taste from my food history background (with some help from a sister who is a wine and olive oil judge). The others were easy once I had techniques that worked to teach two of the senses. I also taught writing family history and personal memoirs, which gave me an excuse to bring home-cooked food and favourite family foods and food memories into play, because they use all the senses. The university I taught at closed most of its outreach courses and so I was suddenly unemployed and I’ve not yet found anyone who wants to learn these things.

It’s a real treat to return to my fragrant past and to remember that just because no-one is interested in learning how to write the senses from me any more, that doesn’t mean I have to lose the cool aspects.

I still look at most novels and analyse the writer’s background from how they use their senses. Australians are my favourite, largely because I am Australian. We love using sight, but also use sound to a degree. It’s quite hard to find an Australian writer of fantasy or science fiction who uses all the senses effectively. Historical fiction writers are more courageous in this, especially the ones who want to communicate the grunge and grime of everyday life. If an Australian writer wants to bring a unique touch to their work, learning methods of incorporating the other senses would do it for so many of them.

I so miss teaching this! It was good for my writing as well. Teaching is very handy for skills maintenance. So, it seems, are hot baths.